The Young Women Grappling With an ‘Old Man’s Disease’ NYT Par :Roni Caryn Rabin and Lucy Lu 11 novembre 2025 à 17:36 Diagnosed with A.L.S., they traded stories, drank tequila and made grim jokes at a unique annual gathering on Cape Cod. © Lucy Lu for The New York TimesLeah Stavenhagen, now 32, started Her A.L.S. Story in 2021, two years after she herself was diagnosed with A.L.S., because she wanted to connect with other young women with the disease. A BiPAP machine helps her breathe.