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The Young Women Grappling With an ‘Old Man’s Disease’

Diagnosed with A.L.S., they traded stories, drank tequila and made grim jokes at a unique annual gathering on Cape Cod.

© Lucy Lu for The New York Times

Leah Stavenhagen, now 32, started Her A.L.S. Story in 2021, two years after she herself was diagnosed with A.L.S., because she wanted to connect with other young women with the disease. A BiPAP machine helps her breathe.
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